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po | 35-44 | Male | On medication for 1 to less than 2 years | Patient
7/21/2009
Condition: Fabry Disease
Overall rating 2.7
Effectiveness
Ease of Use
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I am on Agalsidase Beta IV (Fabryzyme) and today will make infusion #89. There are somedays when I think that the ERT is working, but I have had more "bad" days that "good" compared to before starting. However I have not had as many ER visits for the pain, so that is a plus. But the 2 to 3 hours every two weeks spent getting infused is in my opinion not well spent. I am in no way saying this therapy does not work, but I guess you have to make a personal choice.

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sandi81969 | 35-44 | Female | On medication for 2 to less than 5 years | Patient
12/5/2008
Condition: Fabry Disease
Overall rating 4.3
Effectiveness
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Even though this treatment is extremely expensive and time consuming (every 2 weeks for the rest of my life), I am grateful that I have this treatment. I feel so much better and I have more energy! I feel like a whole new person!

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