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58 People found this comment helpful

I am in my 1st 6 mos. of using Aromasin after 2 & 1/2 yrs on Tamoxafin. I am dealing with significant joint and bone pain (which is like a throbbing tooth ache, and am limited in physical activities because it hurts to move. I keep telling myself I can do it for the prescribed 2 & 1/2 yrs, but sometimes I have trouble feeling positive about the idea. I'm 64, and I really hope that when I'm d...

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3 People found this comment helpful

After 3 months of taking aromasin I developed a painful wrist. My Oncology has advised me to stop two weeks ago and the pain of my wrist is still there. What should I do

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BLONDIE | 55-64 | Female | On medication for 1 to less than 2 years | Patient
7/15/2013
Condition: Advanced Breast Cancer Progression Post-Antiestrogen Therapy
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

THIS MEDICATION HAS WORKED FOR ME I HAVE BEEN FREE FOR 18 MONTHS SINCE STARTING THE TREATMENT

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me615 | 45-54 | Female | On medication for 1 to 6 months | Patient
6/25/2013
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

i switched off the Tamoxifen about 45 days ago .... all the bad side effects. I feel the same as on Tamoxifen with the Exemestane, but I am getting a reoccurrence of a bad, painful rash around my face ? Anyone else experience this? I don't know if i should just switch back to the Tamoxifen.

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monster | 65-74 | Female | On medication for 5 to less than 10 years | Patient
6/4/2013
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

I have taken this drug for the past 5 years and now I am off. I am going thru extreme mood changes coming off the drug

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Anonymous | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
5/2/2013
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

Started with Arimedex and quit taking it after 7 weeks. Could not tolerate the side effects..joint pain especially in knees and hips my shoulders and back were so painful I could hardly walk, the bottoms of my feet felt like they were on fire..I felt exhausted, with extreme fatigue from the moment I got up in the morning..I had terrible insomnia and was very depressed. My dr. told me I could not and should not go without any treatment so he put me on aromasin(exemestane)..This drug took about 13 weeks to really kick in as far as the side effects. At one point I thought I was not going to have any but then they started.. Almost all of the same side effects are there except for the burning on the bottoms of my feet (instead I have a spot on my thigh that feels like someone is holding a hot iron on my leg). The depression comes and goes and I never know when it is going to hit. My memory is very bad..I read and work at brain puzzles hoping to help my memory. Recently my left wrist started hurting and the pain has escalated to the point where I feel like it is broken..but i know it is not it just feels like it. With all that said I have been on it 9 months and wonder if I any of this damage is reversible. My heart goes out to all of you ladies who are suffering so much with this drug..and we don't even know if it is going to keep the cancer from coming back. I have in all of this experience started to eat a plant based diet, lots of raw organic fruits and vegetables and started juicing hoping to help my body naturally heal itself to eventually get off of this drug. It is risky but so is taking the drug especially when we have no guarantees it is going to work. Praying for you all, I don't know who you are but God does. God blessRead More Read Less

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Sonya8401 | 55-64 | Female | On medication for 2 to less than 5 years | Patient
4/10/2013
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

Been taking Aromasin for 2 1/2 years. I have weakness in my legs, muscle pain and I am tired and dragging several days a week. My oncologist advised that I must take it for 5 yrs. Also, have night sweats which disturbs my normal sleeping pattern. Lately I noticed a racing heart rate of 105 beats. Disgusted with taking it!!!

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dd | 55-64 | Female | On medication for 1 to less than 2 years | Patient
3/11/2013
Condition: Other
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I too was diagnosed with early breast cancer. I had a lumpectomy and lymphnodectomy, along with radiation 5xweek for 8 weeks. Been on aromasin for a year and the side effects are driving me crazy. Weight gain, hair thinning and insomnia among other aches..I want to stop taking this drug so much but have no choice since the other cancer drugs have bad side effects as well. I too find it strange that after a year, the side effects seem to get worse or grow....

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lovie1332 | 55-64 | Female | On medication for 1 to 6 months | Patient
2/20/2013
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

Like many of you who have written a review of this medication, I too have experienced the unbearable, dibilitating painful joints and body when taking this medicine, along with depression that felt like doom came over me. It made me feel worse. I have tried this medicine twice now, once after 1 1/2 years after my double mastectomy after having been on tamoxifin. Not having been able to tolerate the Famara either with the same experience of body pain and depression. Tamoxifin causes some side effects but are more manageable, especially working 40 hours or more a week. Fatigue is the major effect for me on all of these drugs. For a while I was allowed to start my work day at 10:00 AM and work until 6:00 PM, but that isn't the case anymore. I try and fight my fatigue with a nap in my car at lunch which has made a difference for me. It is all a struggle however. And now, the research shows that 10 years of after treatment is better than 5. So it looks like this is my life for much longer than anticipated in the beginning of finding out I had breast cancer. It's good to know that I am not the only one having trouble like this - validation is a great thing.Read More Read Less

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Rose | 55-64 | Female | On medication for 2 to less than 5 years | Patient
2/18/2013
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I had early onset breast cancer. Had mamosite radition for 5 days and no chemo. Started out on arimidex for 3 monhs and felt totally out of it. Switched to aromasin 17 moths ago. Have severe joint pain, insomnia, some depression, numbing and tingling in my fingers. Had carpal tunnel surgey on the right hand. Know the med is causing symptoms in the left hand, so no surgery. Very hard to function a times. Not sure what to do. Afraid to stop taking it, but feel so much better off of it. Would love to know why side effects show up a year after starting the med. Read More Read Less

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Bogie | 55-64 | Female | Patient
1/5/2013
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I find Aromasin to have the least amount of side effects but one of the worse side effects. Joint and muscle pain with artist and painful trigger thumb and finger. I feel like my hands won't hold a pen and I drop things constantly. Please know this is direct side effect to the aromasin. I'm 55 yrs young and feel 100 inside. I can handle a lot but this is very painful and I hope there is no permanent damage.

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Kates6 | 55-64 | Female | On medication for 6 months to less than 1 year | Patient
12/30/2012
Condition: Advanced Breast Cancer Progression Post-Antiestrogen Therapy
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

Miserable with all over body aches. Knees, hands, feet. Can't find the energy to exercise and barely get out of bed in the a.m. I am weighing the possibility of ending treatment. Was on Tamoxifen for 3 years - switched to Aromasin 6 months ago. I am not sure that another two years (now reports are saying take the meds for 10 years vs 5!) is worth the recurrence risk. I don't feel I have much of a lifestyle at all this way. What are others doing????

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Vivian | 55-64 | Female | On medication for 1 to 6 months | Patient
10/6/2012
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction

Hi all been reading your feedback. I am in same boat as those who are wondering what would happen, would it be detrimental to stop taking these drugs. I was prescribed tamaxifen then told not to take it. I was then given Arimedex and suffered severe fatigue breathlessness, felt like 100 couldnt make it up the stairs, it was very distressing.Got worse quickly, couldnt wash hair,lift anything, drive the ripple affect -you can imagine. Stopped taking them and breathing improved dramatically. Was given Femera, this was just as bad, sweats and lack of sleep equally bad, but seemed better at first two weeks but third week the scary breathlessnes returned and I stopped taking them. suffered for three weeks AFTER stopping this drug. Now Dr wants me to take aromasin, and like other ladies, I just starting to feel a little normal for first time in 9 months, and am afraid to take them. Quality oflife is important to and when you read that it does not prevent return if your susceptable but only slows it down it does make you wonder. I too felt guilty about not taking them- so what are we to do one dr thinks quality life equally important -another says vital to take the drugs. I had early estrogen fed breast cancer very small lobular infiltrating. nothing in nodes. lumptecomy and radiation -similar to other ladies so is the risk worth the damage these drugs appear to cause?? I too would have liked a space to enable us to respond to blogs and feedback. thanks for listening to my rant , warm wishes I have to take these drugs for seven weeks and report back to onocologist- and I am afraid to take them!!!feel guilty if I dont.Read More Read Less

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Bogie | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
9/25/2012
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

Developed Carpel Tunnel Symdrome and trigger finger. Fatty liver and high blood pressure since taking Aromasin generic for ER PR positive breast cancer. Abdominal bloating, and just diagnosed with kidney cancer. Arimidex was even worse, I'm running out of options.

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[email protected] | 65-74 | On medication for 1 to less than 2 years | Patient
9/9/2012
Condition: Breast Cancer that has Spread to Another Part of the Body
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

so far so good

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Mts.Mac | 65-74 | Female | On medication for 2 to less than 5 years | Patient
9/2/2012
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

After almost 5 years on Aromasin (after mascetomy, 6 chemos and 30 radiations) and many side effects that have left me with permanent foot pain, a knee blowout, significant hair loss, weight gain, joint pain,bone loss, skin problems etc. I am sorry to report I have a reocurrence in my other breast. No sense in preserving the breast tissue on this side since I am afraid of another issue down the line so I will be having another mascetomy. I am very disppointed but resigned to the surgery. I am 72 years old now and got through the worst of the temporary side effects and thought it was worth dealing with the rest in lieu of cancer. So the damage to my body has been done and I don't think stopping the drug will result in any significant "bouncing back" but I'm hoping to feel a little better. I stopped taking it today!! I do believe that it is probably a worthwhile treatment and I wish it had worked for me.Read More Read Less

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patiofurn21 | 75 or over | Female | On medication for 1 to less than 2 years | Patient
8/22/2012
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 3.3
Effectiveness
Ease of Use
Satisfaction

sweats that last 30 to 45 minutes, weight gain, pain in joints and burning sensation when you urinate

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Anonymous | 55-64 | Female | On medication for 1 to less than 2 years | Patient
8/8/2012
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with Stage IIa breast cancer 3 years ago. No lymph node affected. Had mastectomy of left breast. I was originally on Arimidex for 12 months and felt absolutely horrible. Switched to Armosasin and am able to tolerate it better but still have soreness in my knees. It's better than Arimidex but I'd rather not have to take anything.

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Jan | 55-64 | On medication for 1 to 6 months | Patient
7/31/2012
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I was given Aromasin appx 1 month ago. I had been on Arimidex and could not tolerate it. I am having trouble with the Aromasin also. Cannot think, depressed, extreme hot flashes. I am 61 and had stage 1 breast cancer, not in my lympnoids, I am wondering if I should even take this medication. I feel so much better without it. Just not sure!

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Anonymous | 55-64 | Female | On medication for 1 to less than 2 years | Patient
7/15/2012
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

fatigue,bone and joint pain in hands and feet sometimes pretty severe.

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amarrero | 65-74 | Female | On medication for 2 to less than 5 years | Patient
7/11/2012
Condition: Hormone Receptor Positive Postmenopausal Early Breast Cancer After Adjuvant Tamoxifen
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I am so glad I found all these postings. I am on Aromacin for 2 yrs now and I have so many "power surges" during the night I can't sleep. I have so much pain in my joints and my bones. I had arthritis before I started this med, but now it is alot worse. I am afraid of not taking the medication because I don't want the Cancer to come back. I want to thank all the women who have written about their experience with this drug...I thought I was going nuts. I walk and try to do the same things all my friends do even if I am in pain. I refuse to let this bring me down.Read More Read Less

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Barbi | 45-54 | Female | On medication for 2 to less than 5 years | Patient
7/9/2012
Condition: Prevention of Breast Cancer
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

I am 45 years old and have been on this drug for two years. My oncologist switched me from Tamoxifin because I could hardly walk after being stationary for 30 minutes or longer. Aromisin side effects aren't as severe. I work out three days a week and walk 30 -60 minutes per day. It seems to help the joint pain, sleeplessness and weight gain, but the stiffness remains. Recently I developed a burning in one knee and a sharp pain in the other foot. It feels as if my achilles tendon could snap if pulled in the wrong direction! My knee feels as if something has torn and has begun unravelling? Has anyone experienced damaged tendons or ligaments? My Dr. thinks this is unrelated, but my trainer is a BC survivor and she has had major issues with her knee and achilles tendon (surgery) after being on these drugs. I'm not a die-hard bodybuilder, just a mom wanting to feel well enough to keep up with my kids!Read More Read Less

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