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9 People found this comment helpful

The protocol combined Pentostatin with Rituxin (Rituximab). Treatment was administered every 3-4 weeks for 5 cycles. The first night after treatment, I experienced a hot, flushed feeling and some mild nausea. There was some mild fatigue for a few days afterwards. The flushed feeling seemed to diminish with each treatment cycle until I experienced none by cycle four and five. The mild fatigue ...

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1 People found this comment helpful

my mother has cml and her doctor was given her the name of this medication pentostatin its 40000.00 her ins will not help what can we do she had a bone morrow in 2004 on may 19 at duck in nc is there any way any one can help

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ronda | 35-44 | Female | On medication for less than 1 month | Caregiver
6/28/2008
Condition: Progressive Chronic Lymphocytic Leukemia
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

my mother has cml and her doctor was given her the name of this medication pentostatin its 40000.00 her ins will not help what can we do she had a bone morrow in 2004 on may 19 at duck in nc is there any way any one can help

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CyProd | 55-64 | Male | On medication for 1 to 6 months | Patient
10/3/2007
Condition: Progressive Chronic Lymphocytic Leukemia
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

The protocol combined Pentostatin with Rituxin (Rituximab). Treatment was administered every 3-4 weeks for 5 cycles. The first night after treatment, I experienced a hot, flushed feeling and some mild nausea. There was some mild fatigue for a few days afterwards. The flushed feeling seemed to diminish with each treatment cycle until I experienced none by cycle four and five. The mild fatigue continued, but my hemoglobin count was also below normal when treatment began. This protocol was very effective. I remained in remission for over 2 1/2 years. The CLL is now slowly beginning to reassert itself. We begin the protocol again in mid-October. Because of the combination of Pentostatin and Rituxin, and our early intervention this time, my Mayo doctor believes that I may only require 2-3 treatment cycles. It is possible to work the treatments around a very busy schedule. Yes, I need to build in soem time to "recover" from each treatment. But this has been a very effective option for my CLL. My health returned to where I could jog for 30 minutes 5 days a week and resume all normal activities. Read More Read Less

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