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2.4 Overall Rating

Effectiveness

Ease of Use

Satisfaction

Most voted positive review

13 People found this comment helpful

was surprised to read other reviews but i am sofar very pleased with this medication over all activity and breathing much much better am also on Adcirca(1yr) i've only been on Opsumit for 4mo. but this combo is working for me for the first time in 2yrs i feel great

Most voted negative review

1 People found this comment helpful

It has done absolutely nothing to help my breathing.

Shared reviews and ratings

Anonymous | Female | On medication for 6 months to less than 1 year | Caregiver
6/12/2023
Condition: Pulmonary Arterial Hypertension
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

My mom was on this and her symptoms did not improve. She switched to ambresentan and still did not improve. Sadly she passed away from respiratory failure

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Cindyd | 65-74 | Female | On medication for 1 to 6 months | Patient
11/29/2022
Condition: Pulmonary Arterial Hypertension
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I have been on this medication for 2 months and have been getting worse over time. I feel like I have the flu, my shortness of breath is also increasing and the Dr keeps telling me stay on the oxygen. I am on the oxygen and I keep having shortness of breath more and more. My next appointment is in 1 month but I don’t know if I can hold out till then.

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Jen | 45-54 | Female | On medication for 2 to less than 5 years | Caregiver
4/19/2019
Condition: Pulmonary Arterial Hypertension
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

My mother is on 8 liters oxygen with pulmonary hypertension. Today, she did an echo and her pulmonary hypertension is completely gone! Side effects, low hemoglobin, blood transfusion (once). It doesn't magically make your copd go away, but has helped her tremendously.

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Anonymous | 35-44 | Female | On medication for 1 to less than 2 years | Patient
2/16/2019
Condition: Pulmonary Arterial Hypertension
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

it has worked for me with 40mg of adcirca once daily. i take at nite. seems symptoms are returning & i cant breathe thru my nose for 2 months no sinus infection. possibly side effect??

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Shane | 35-44 | On medication for less than 1 month | Patient
7/18/2018
Condition: Pulmonary Arterial Hypertension
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I discontinued opsumit after less than a week due to an increased difficulty breathing, rapid pulse, chest pain, irregular heartbeat and a decrease in blood pressure. I'm not sure why my dr prescribed this medication to me since all accomplished was making me feel worse which was about the last thing I need.

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2tired | 75 or over | Female | On medication for 1 to 6 months | Patient
12/1/2017
Condition: Pulmonary Arterial Hypertension
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

It has done absolutely nothing to help my breathing.

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Mary | 45-54 | On medication for 2 to less than 5 years | Patient
10/27/2017
Condition: Pulmonary Arterial Hypertension
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I wrote a review on Opsumit in Feb of 2015 on this website at which time I had been on it a few months, now I have been on Opsumit 3 years. I feel worse than ever. Pulmonologist states my PAH has NOT gotten worse since diagnosed in 2011 yet I am bed ridden with chest pain, severe dizziness, nausea and horrible headaches. I am in the process of testing(sleep study, echocardiogram)im order for him to change me back to Tracleer and give that drug another shot. At least on Tracleer I could walk a little. I feel my best each evening about 2 hours before taking my daily dose of Opsumit and then go downhill after I take it...leading me to believe this medicine 3 doctors in Phoenix AZ rave about is making me sicker. I DO NOT recommend this medicine although everyone's body is different so what doesn't work for some might be a blessing for another. I wish you all well on this journey with PAH...I sure know how rough it can be especially being alone with no living family.Read More Read Less

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mselaineious | 45-54 | Female | On medication for 1 to 6 months | Patient
8/29/2017
Condition: Pulmonary Arterial Hypertension
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

I have CHF and pulmonary hyper tension and right heart failer, I am 47 . opsumit seems to male me unable to take walks with having to take many breaks

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BG | 55-64 | On medication for 1 to 6 months |
5/15/2016
Condition: Pulmonary Arterial Hypertension
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction

I started Opsumit on 1st of April, 2016. I developed intense pressure on my eyes, between my ears and get exhausted climbing couple of stirs. I went for my annual CT an Echo on the 5th of May, 2016 only to discover fluid in my lungs. I got a call from the specialty pharmacy to refill and I shared the result of my CT and I was directed to talk to the pharmacist who asked me to discontinue the medication immediately. I will call and share this with doctor. Please investigate your fatigue and exhaustion if you are taking this drug.Read More Read Less

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jo jo | 45-54 | Female | On medication for 1 to 6 months | Patient
10/22/2015
Condition: Pulmonary Arterial Hypertension
Overall rating 4.7
Effectiveness
Ease of Use
Satisfaction

was surprised to read other reviews but i am sofar very pleased with this medication over all activity and breathing much much better am also on Adcirca(1yr) i've only been on Opsumit for 4mo. but this combo is working for me for the first time in 2yrs i feel great

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Mary | 45-54 | Female | On medication for 1 to 6 months |
2/1/2015
Condition: Pulmonary Arterial Hypertension
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

I was diagnosed with PAH in 2011. I was on Tracleer but felt dizzy 100% of the time. I was put on Opsumit 4 months ago and feel worse than ever. Dizzy, dull chest pain, weak, tired, depressed more than on tracleer and sick to my stomach all the time.

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stronggirl | 25-34 | Female | On medication for 1 to 6 months | Patient
12/22/2014
Condition: Pulmonary Arterial Hypertension
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

Was on bosentan (Tracleer) and doing well, switched to Opsumit and went downhill. Extremely fatigued, short of breath, no energy. Switched back to Tracleer and feeling much better. Do not recommend this medication.

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Judie | 75 or over | Female | On medication for 1 to 6 months | Patient
9/1/2014
Condition: Pulmonary Arterial Hypertension
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

I was only on this dug for a month. I quit taking it as it made my breathing worse. I also had a cough and was tired. I have scleroderma and that is the cause of my PAH.

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